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About Huntington’s WA

Huntington’s WA is the leading community services organisation dedicated to providing support and advocacy for Western Australians impacted by Huntington's disease.

 Huntington’s WA’s strong and proud legacy has its roots in the commitment, resilience and dedication of the families who founded the organisation in 1974. Originally known as the Australian Huntington’s Disease Association of WA, members sought to raise awareness of the disease and bring hope, dignity and support to the Huntington’s community.

 Since that time, Huntington's WA has continued to evolve in response to the needs of individuals, carers, children, young people and families impacted by the disease to meet the extraordinary challenges they face. Huntington’s WA also provides support and education about Huntington’s disease to health and community care professionals.

Today Huntington’s WA has a strong track record of support and advocacy made possible by the commitment and expertise of people who share our purpose, values and vision for the future.

Through our network of partnerships and collaborations together with our range of services and  a robust business model, we propose to continue:

• co-designing and developing a holistic approach to supporting people with Huntington’s disease; and
•being widely recognised for our specialised knowledge and skills honed over forty years of service delivery.


Our Strategic Directions 2021-2025 outlines how we intend to continue being proactive in making a difference for all who are impacted by Huntington’s disease throughout Western Australia. 

The Strategic Plan is available here.