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Useful Websites

The following links will provide more information about Huntington's Disease (HD), other Australian and international HD websites, and social networking forums

Other Australian Associations

Huntington's Disease Network of Australia - find information for local specialist clinics in your state

International HD websites


  • Huntington’s Disease Youth Organisation HDYO
    Comprehensive website dedicated to Huntington’s affected youth around the globe. Contains relevant information for all ages, parents, friends, and professionals adapted to be age-appropriate.
  • Generation Next
    Information and content about mental health and growing up as a young person.
  • Young Carers WA
    Information specifically for young people caring for a loved one.
  • Headspace
    Australia's National Youth Mental Health Foundation. The Headspace mission is to deliver improvements in the mental health, social wellbeing and economic participation of young Australians aged 12-25.


General Information

Living with HD

Carer Information

Genetic testing & family planning


Crisis Support

  • Lifeline Crisis support and suicide prevention phone 13 11 14
  • Beyond Blue is a national, independent, not-for-profit organisation working to address issues associated with depression, anxiety and related substance misuse disorders in Australia.
  • Call 000 (Emergency Services) if life is in danger