Useful Websites
The following links will provide more information about Huntington's Disease (HD), other Australian and international HD websites, and social networking forums
Other Australian Associations
Huntington's Disease Network of Australia - find information for local specialist clinics in your state
- Huntington's WA
- Huntington's NSW
- Huntington's Queensland
- Huntingtons South Australia and Northern Territory
- Huntington's Victoria
- Huntington's Disease Association Tasmania
International HD websites
- International Huntington Association
Bridging site for Huntington’s organisations around the globe – find your local HD organisation or contact. - European Huntington´s Disease Network
- Huntington's Disease Society of America (HDSA)
- Huntington Society of Canada
- Huntington's Disease Association (United Kingdom)
- Scottish Huntington's Association
- Japan's Huntington's Disease Network
- Huntington Study Group Education Videos
Youth
- Huntington’s Disease Youth Organisation HDYO
Comprehensive website dedicated to Huntington’s affected youth around the globe. Contains relevant information for all ages, parents, friends, and professionals adapted to be age-appropriate. - Generation Next
Information and content about mental health and growing up as a young person. - Young Carers WA
Information specifically for young people caring for a loved one. - Headspace
Australia's National Youth Mental Health Foundation. The Headspace mission is to deliver improvements in the mental health, social wellbeing and economic participation of young Australians aged 12-25.
Communities
- HDYO - Huntingtons Disease Youth Organisation- an international non-profit voluntary organisation to provide information about HD for young people by young people. UK site.
- Facebook - Huntington's WA
- Huntington’s Disease Lighthouse Families Support Centre
General Information
- Stanford University HOPES Project - Provides scientific information for the lay-person
- Your Genes Your Health - A multimedia guide to genetic disorders
- Huntington Study Group - education videos
- HD Booklets & Publications Canada
Living with HD
- Carers WA
- Centrelink
Commonwealth financial assistance for individuals and carers - Office of the Public Advocate
Advanced Health Directives/Enduring power of Guardianship - Huntington Study Group - education videos
Carer Information
- Carer Gateway- Australian Government information for Carers.
- Carers WA
- Huntington Study Group - education videos
Genetic testing & family planning
Research
- HD Buzz- Huntington's disease research news. Written by scientists for the global community
- Huntington's Disease News
- News HD
- Stanford University HOPES Project - Provides research information for the lay-person
- The Huntington Study Group - Group of clinical researchers from US, Canada, Europe and Australia
- American National Institute of Neurological Disorders and Stroke
- HD Drug Works - US site provides information on treatment options, drug development and clinical trials.
- CHDI - Funded by High Q Foundation to develop drugs that prevent or slow HD.
Crisis Support
- Lifeline Crisis support and suicide prevention phone 13 11 14
- Beyond Blue is a national, independent, not-for-profit organisation working to address issues associated with depression, anxiety and related substance misuse disorders in Australia.
- Call 000 (Emergency Services) if life is in danger
